His son being accepted for campus housing is welcome news, writes columnist Joe MacDonald, who must now focus on learning to ...

Saying “I’m here if you need to talk” is a testament to my son’s strength. It sounds like a simple phrase that most would use, but it’s more than that for Caeleb. It’s evidence that he uses his life ...

In a real-world study in South Korea, approved hemophilia A therapy Adynovate zeroed out the number of bleeding episodes for ...

Since earning her ham radio license, columnist G Shellye Horowitz is grateful to have a reliable source of connection and communication.

Columnist Allyx Formalejo's neurodivergence and her husband's hemophilia have helped, not hurt, in finding purpose in their ...

As someone with von Willebrand disease, columnist Jennifer Lynne hopes that trials for VGA039 could lead to a long-sought new treatment.

Switching to the extended half-life therapy Elocta, sold in the U.S. as Eloctate, improved control of bleeds among hemophilia ...

Columnist Joe MacDonald, who has essential tremors, shares with his sons the feeling of having a sometimes visible disorder.

Alhemo’s expanded approval drew on explorer8, a Phase 3 study that enrolled about 150 hemophilia A or B patients, who didn't ...

The Rare Rewritten campaign hopes to change a misconception about women with X-linked disorders, columnist G Shellye Horowitz ...

Columnist Jennifer Lynne shares what it's like to be a woman living with hemophilia — things she wishes doctors would know about the disorder.

Columnist Allyx Formalejo says that due to ADHD, her tendency to be hyperfocused and need to "help" is really a need for ...